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- Publisher Website: 10.1080/09540261.2019.1659236
- Scopus: eid_2-s2.0-85074023987
- PMID: 31547726
- WOS: WOS:000487436600001
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Article: Systematic review (meta-aggregation) of qualitative studies on the experiences of family members caring for individuals with early psychosis
Title | Systematic review (meta-aggregation) of qualitative studies on the experiences of family members caring for individuals with early psychosis |
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Authors | |
Keywords | Meta-aggregation first psychosis caregiver qualitative systematic review |
Issue Date | 2019 |
Publisher | Taylor & Francis. The Journal's web site is located at http://www.tandfonline.com/toc/iirp20/current |
Citation | International Review of Psychiatry, 2019, v. 31 n. 5-6, p. 491-509 How to Cite? |
Abstract | Despite the importance of the role of caregivers of people with psychosis being widely recognized, comprehensive understanding of their experience is limited. A thorough understanding of the experience of caregivers over the journey of the illness, particularly during its early stages, is crucial. Qualitative studies published between 1 January 1949 and 31 January 2018 were obtained from seven databases based on PICo search strategy. Meta-aggregation methodology of the Joanna Briggs Institute (JBI) was adopted to aggregate existing qualitative findings about caregivers’ experiences. Twenty-eight qualitative studies on 635 caregivers and family members were included in the review. Six inter-related categories—‘stigma’, ‘help-seeking’, ‘service encounter’, ‘emotional challenges’, ‘on becoming a caregiver’ and ‘making sense of experience’—were aggregated from 129 themes from the sub-acute stage, the acute stage and the recovery or residual stage. Three statements about caregivers’ experiences of their relative’s first episode of psychosis were synthesized from the findings. Results highlighted the need of incorporating caregiver intervention into the existing services to support the emotional challenges, uncertainty, and stigma-related burden along the caregiving journey. |
Persistent Identifier | http://hdl.handle.net/10722/278616 |
ISSN | 2023 Impact Factor: 3.7 2023 SCImago Journal Rankings: 1.042 |
ISI Accession Number ID |
DC Field | Value | Language |
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dc.contributor.author | MUI, EYW | - |
dc.contributor.author | Chan, SKW | - |
dc.contributor.author | CHAN, PY | - |
dc.contributor.author | Hui, CLM | - |
dc.contributor.author | Chang, WC | - |
dc.contributor.author | Lee, EHM | - |
dc.contributor.author | Chen, EYH | - |
dc.date.accessioned | 2019-10-21T02:10:53Z | - |
dc.date.available | 2019-10-21T02:10:53Z | - |
dc.date.issued | 2019 | - |
dc.identifier.citation | International Review of Psychiatry, 2019, v. 31 n. 5-6, p. 491-509 | - |
dc.identifier.issn | 0954-0261 | - |
dc.identifier.uri | http://hdl.handle.net/10722/278616 | - |
dc.description.abstract | Despite the importance of the role of caregivers of people with psychosis being widely recognized, comprehensive understanding of their experience is limited. A thorough understanding of the experience of caregivers over the journey of the illness, particularly during its early stages, is crucial. Qualitative studies published between 1 January 1949 and 31 January 2018 were obtained from seven databases based on PICo search strategy. Meta-aggregation methodology of the Joanna Briggs Institute (JBI) was adopted to aggregate existing qualitative findings about caregivers’ experiences. Twenty-eight qualitative studies on 635 caregivers and family members were included in the review. Six inter-related categories—‘stigma’, ‘help-seeking’, ‘service encounter’, ‘emotional challenges’, ‘on becoming a caregiver’ and ‘making sense of experience’—were aggregated from 129 themes from the sub-acute stage, the acute stage and the recovery or residual stage. Three statements about caregivers’ experiences of their relative’s first episode of psychosis were synthesized from the findings. Results highlighted the need of incorporating caregiver intervention into the existing services to support the emotional challenges, uncertainty, and stigma-related burden along the caregiving journey. | - |
dc.language | eng | - |
dc.publisher | Taylor & Francis. The Journal's web site is located at http://www.tandfonline.com/toc/iirp20/current | - |
dc.relation.ispartof | International Review of Psychiatry | - |
dc.rights | AOM/Preprint Before Accepted: his article has been accepted for publication in [JOURNAL TITLE], published by Taylor & Francis. AOM/Preprint After Accepted: This is an [original manuscript / preprint] of an article published by Taylor & Francis in [JOURNAL TITLE] on [date of publication], available online: http://www.tandfonline.com/[Article DOI]. Accepted Manuscript (AM) i.e. Postprint This is an Accepted Manuscript of an article published by Taylor & Francis in [JOURNAL TITLE] on [date of publication], available online: http://www.tandfonline.com/[Article DOI]. | - |
dc.subject | Meta-aggregation | - |
dc.subject | first psychosis | - |
dc.subject | caregiver | - |
dc.subject | qualitative systematic review | - |
dc.title | Systematic review (meta-aggregation) of qualitative studies on the experiences of family members caring for individuals with early psychosis | - |
dc.type | Article | - |
dc.identifier.email | Chan, SKW: kwsherry@hku.hk | - |
dc.identifier.email | Hui, CLM: christyh@hku.hk | - |
dc.identifier.email | Chang, WC: changwc@hku.hk | - |
dc.identifier.email | Lee, EHM: edwinlhm@hku.hk | - |
dc.identifier.email | Chen, EYH: eyhchen@hku.hk | - |
dc.identifier.authority | Chan, SKW=rp00539 | - |
dc.identifier.authority | Hui, CLM=rp01993 | - |
dc.identifier.authority | Chang, WC=rp01465 | - |
dc.identifier.authority | Lee, EHM=rp01575 | - |
dc.identifier.authority | Chen, EYH=rp00392 | - |
dc.description.nature | link_to_subscribed_fulltext | - |
dc.identifier.doi | 10.1080/09540261.2019.1659236 | - |
dc.identifier.pmid | 31547726 | - |
dc.identifier.scopus | eid_2-s2.0-85074023987 | - |
dc.identifier.hkuros | 307542 | - |
dc.identifier.volume | 31 | - |
dc.identifier.issue | 5-6 | - |
dc.identifier.spage | 491 | - |
dc.identifier.epage | 509 | - |
dc.identifier.isi | WOS:000487436600001 | - |
dc.publisher.place | United Kingdom | - |
dc.identifier.issnl | 0954-0261 | - |