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- Publisher Website: 10.1186/s12904-020-00587-0
- Scopus: eid_2-s2.0-85086354616
- PMID: 32513166
- WOS: WOS:000540829300001
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Article: Barriers to advance care planning: a qualitative study of seriously ill Chinese patients and their families
Title | Barriers to advance care planning: a qualitative study of seriously ill Chinese patients and their families |
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Authors | |
Keywords | End of life care Palliative care Advance directives Do-not-attempt cardiopulmonary resuscitation |
Issue Date | 2020 |
Publisher | BioMed Central Ltd. The Journal's web site is located at http://www.biomedcentral.com/bmcpalliatcare/ |
Citation | BMC Palliative Care, 2020, v. 19 n. 1, p. article no. 80 How to Cite? |
Abstract | Background:
Advance care planning (ACP) facilitates identification and documentation of patients’ treatment preferences. Its goal aligns with that of palliative care – optimizing quality of life of seriously ill patients. However, concepts of ACP and palliative care remain poorly recognized in Chinese population. This study aims at exploring barriers to ACP from perspective of seriously ill patients and their family caregivers.
Methods:
This is a qualitative study conducted in a Palliative Day Care Centre of Hong Kong between October 2016 and July 2017. We carried out focus groups and individual interviews for the seriously ill patients and their family caregivers. A semi-structured interview guide was used to explore participants’ experiences and attitudes about ACP. Qualitative content analysis was adopted to analyze both manifest content and latent content.
Results:
A total of 17 patients and 13 family caregivers participated in our study. The qualitative analysis identified four barriers to ACP: 1) limited patients’ participation in autonomous decision making, 2) cognitive and emotional barriers to discussion, 3) lack of readiness and awareness of early discussion, and 4) unprepared healthcare professionals and healthcare system.
Conclusions:
Participations of seriously ill patients, family caregivers and healthcare workers in ACP initiation are lacking respectively. A series of interventions are necessary to resolve the barriers. |
Persistent Identifier | http://hdl.handle.net/10722/294098 |
ISSN | 2023 Impact Factor: 2.5 2023 SCImago Journal Rankings: 0.907 |
PubMed Central ID | |
ISI Accession Number ID |
DC Field | Value | Language |
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dc.contributor.author | Cheung, JTK | - |
dc.contributor.author | Au, D | - |
dc.contributor.author | Ip, AHF | - |
dc.contributor.author | Chan, J | - |
dc.contributor.author | Ng, K | - |
dc.contributor.author | Cheung, L | - |
dc.contributor.author | Yuen, J | - |
dc.contributor.author | Hui, E | - |
dc.contributor.author | Lee, J | - |
dc.contributor.author | Lo, R | - |
dc.contributor.author | Woo, J | - |
dc.date.accessioned | 2020-11-23T08:26:17Z | - |
dc.date.available | 2020-11-23T08:26:17Z | - |
dc.date.issued | 2020 | - |
dc.identifier.citation | BMC Palliative Care, 2020, v. 19 n. 1, p. article no. 80 | - |
dc.identifier.issn | 1472-684X | - |
dc.identifier.uri | http://hdl.handle.net/10722/294098 | - |
dc.description.abstract | Background: Advance care planning (ACP) facilitates identification and documentation of patients’ treatment preferences. Its goal aligns with that of palliative care – optimizing quality of life of seriously ill patients. However, concepts of ACP and palliative care remain poorly recognized in Chinese population. This study aims at exploring barriers to ACP from perspective of seriously ill patients and their family caregivers. Methods: This is a qualitative study conducted in a Palliative Day Care Centre of Hong Kong between October 2016 and July 2017. We carried out focus groups and individual interviews for the seriously ill patients and their family caregivers. A semi-structured interview guide was used to explore participants’ experiences and attitudes about ACP. Qualitative content analysis was adopted to analyze both manifest content and latent content. Results: A total of 17 patients and 13 family caregivers participated in our study. The qualitative analysis identified four barriers to ACP: 1) limited patients’ participation in autonomous decision making, 2) cognitive and emotional barriers to discussion, 3) lack of readiness and awareness of early discussion, and 4) unprepared healthcare professionals and healthcare system. Conclusions: Participations of seriously ill patients, family caregivers and healthcare workers in ACP initiation are lacking respectively. A series of interventions are necessary to resolve the barriers. | - |
dc.language | eng | - |
dc.publisher | BioMed Central Ltd. The Journal's web site is located at http://www.biomedcentral.com/bmcpalliatcare/ | - |
dc.relation.ispartof | BMC Palliative Care | - |
dc.rights | BMC Palliative Care. Copyright © BioMed Central Ltd. | - |
dc.rights | This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License. | - |
dc.subject | End of life care | - |
dc.subject | Palliative care | - |
dc.subject | Advance directives | - |
dc.subject | Do-not-attempt cardiopulmonary resuscitation | - |
dc.title | Barriers to advance care planning: a qualitative study of seriously ill Chinese patients and their families | - |
dc.type | Article | - |
dc.identifier.email | Yuen, J: jkyuen@hku.hk | - |
dc.identifier.authority | Yuen, J=rp02510 | - |
dc.description.nature | published_or_final_version | - |
dc.identifier.doi | 10.1186/s12904-020-00587-0 | - |
dc.identifier.pmid | 32513166 | - |
dc.identifier.pmcid | PMC7282137 | - |
dc.identifier.scopus | eid_2-s2.0-85086354616 | - |
dc.identifier.hkuros | 318964 | - |
dc.identifier.volume | 19 | - |
dc.identifier.issue | 1 | - |
dc.identifier.spage | article no. 80 | - |
dc.identifier.epage | article no. 80 | - |
dc.identifier.isi | WOS:000540829300001 | - |
dc.publisher.place | United Kingdom | - |
dc.identifier.issnl | 1472-684X | - |