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Article: A Novel X-Linked Inhibitor of Apoptosis Deficient Variant Showing Attenuated Epstein-Barr Virus Response

TitleA Novel X-Linked Inhibitor of Apoptosis Deficient Variant Showing Attenuated Epstein-Barr Virus Response
Authors
KeywordsBIRC4 mutation
Epstein-Barr virus
NOD-2
X-linked inhibitor of apoptosis
X-linked lymphoproliferative syndrome
Issue Date2021
PublisherOxford University Press. The Journal's web site is located at https://academic.oup.com/jpids
Citation
Journal of the Pediatric Infectious Diseases Society, 2021, v. 10 n. 3, p. 345-348 How to Cite?
AbstractIndividuals with cancer and their families assume responsibility for management of cancer as an acute and chronic disease. Yet, cancer lags other chronic diseases in its provision of proactive self-management support in routine, everyday care leaving this population vulnerable to worse health status, long-term disability, and poorer survival. Enabling cancer patients to manage the medical and emotional consequences and lifestyle and work changes due to cancer and treatment is essential to optimizing health and recovery across the continuum of cancer. In this paper, the Global Partners on Self-Management in Cancer puts forth six priority areas for action: Action 1: Prepare patients and survivors for active involvement in care; Action 2: Shift the care culture to support patients as partners in cocreating health and embed self-management support in everyday health-care provider practices and in care pathways; Action 3: Prepare the workforce in the knowledge and skills necessary to enable patients in effective self-management and reach consensus on core curricula; Action 4: Establish and reach consensus on a patient-reported outcome system for measuring the effects of self-management support and performance accountability; Action 5: Advance the evidence and stimulate research on self-management and self-management support in cancer populations; Action 6: Expand reach and access to self-management support programs across care sectors and tailored to diversity of need and stimulation of research to advance knowledge. It is time for a revolution to better integrate self-management support as part of high-quality, person-centered support and precision medicine in cancer care to optimize health outcomes, accelerate recovery, and possibly improve survival.
Persistent Identifierhttp://hdl.handle.net/10722/293406
ISSN
2023 Impact Factor: 2.5
2023 SCImago Journal Rankings: 0.918
ISI Accession Number ID

 

DC FieldValueLanguage
dc.contributor.authorZhong, Y-
dc.contributor.authorHuang, CH-
dc.contributor.authorSoe, WM-
dc.contributor.authorChan, KW-
dc.contributor.authorIsa, MS-
dc.contributor.authorSoh, J-
dc.contributor.authorYap, M-
dc.contributor.authorMacAry, PA-
dc.contributor.authorLau, YL-
dc.contributor.authorChai, LYA-
dc.contributor.authorShek, LPC-
dc.contributor.authorLee, BW-
dc.date.accessioned2020-11-23T08:16:18Z-
dc.date.available2020-11-23T08:16:18Z-
dc.date.issued2021-
dc.identifier.citationJournal of the Pediatric Infectious Diseases Society, 2021, v. 10 n. 3, p. 345-348-
dc.identifier.issn2048-7193-
dc.identifier.urihttp://hdl.handle.net/10722/293406-
dc.description.abstractIndividuals with cancer and their families assume responsibility for management of cancer as an acute and chronic disease. Yet, cancer lags other chronic diseases in its provision of proactive self-management support in routine, everyday care leaving this population vulnerable to worse health status, long-term disability, and poorer survival. Enabling cancer patients to manage the medical and emotional consequences and lifestyle and work changes due to cancer and treatment is essential to optimizing health and recovery across the continuum of cancer. In this paper, the Global Partners on Self-Management in Cancer puts forth six priority areas for action: Action 1: Prepare patients and survivors for active involvement in care; Action 2: Shift the care culture to support patients as partners in cocreating health and embed self-management support in everyday health-care provider practices and in care pathways; Action 3: Prepare the workforce in the knowledge and skills necessary to enable patients in effective self-management and reach consensus on core curricula; Action 4: Establish and reach consensus on a patient-reported outcome system for measuring the effects of self-management support and performance accountability; Action 5: Advance the evidence and stimulate research on self-management and self-management support in cancer populations; Action 6: Expand reach and access to self-management support programs across care sectors and tailored to diversity of need and stimulation of research to advance knowledge. It is time for a revolution to better integrate self-management support as part of high-quality, person-centered support and precision medicine in cancer care to optimize health outcomes, accelerate recovery, and possibly improve survival.-
dc.languageeng-
dc.publisherOxford University Press. The Journal's web site is located at https://academic.oup.com/jpids-
dc.relation.ispartofJournal of the Pediatric Infectious Diseases Society-
dc.rightsPost-print: This is a pre-copy-editing, author-produced PDF of an article accepted for publication in [insert journal title] following peer review. The definitive publisher-authenticated version [insert complete citation information here] is available online at: xxxxxxx [insert URL that the author will receive upon publication here].-
dc.subjectBIRC4 mutation-
dc.subjectEpstein-Barr virus-
dc.subjectNOD-2-
dc.subjectX-linked inhibitor of apoptosis-
dc.subjectX-linked lymphoproliferative syndrome-
dc.titleA Novel X-Linked Inhibitor of Apoptosis Deficient Variant Showing Attenuated Epstein-Barr Virus Response-
dc.typeArticle-
dc.identifier.emailChan, KW: kwchan@hku.hk-
dc.identifier.emailLau, YL: lauylung@hku.hk-
dc.identifier.authorityLau, YL=rp00361-
dc.description.naturelink_to_subscribed_fulltext-
dc.identifier.doi10.1093/jpids/piaa048-
dc.identifier.scopuseid_2-s2.0-85104047007-
dc.identifier.hkuros318995-
dc.identifier.volume10-
dc.identifier.issue3-
dc.identifier.spage345-
dc.identifier.epage348-
dc.identifier.isiWOS:000642325300019-
dc.publisher.placeUnited Kingdom-

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