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Article: Parents' understanding of their child's congenital heart disease
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TitleParents' understanding of their child's congenital heart disease
 
AuthorsCheuk, DKL1
Wong, SMY1
Choi, YP1
Chau, AKT1
Cheung, YF1
 
Issue Date2004
 
PublisherB M J Publishing Group. The Journal's web site is located at http://heart.bmjjournals.com/
 
CitationHeart, 2004, v. 90 n. 4, p. 435-439 [How to Cite?]
DOI: http://dx.doi.org/10.1136/hrt.2003.014092
 
AbstractObjectives: To assess parents' understanding of their child's congenital heart disease in various knowledge domains and to identify significant determinants of parental knowledge. Design: Cross sectional questionnaire survey. Setting: Tertiary paediatric cardiac centre. Patients: 156 parents of children with relatively simple congenital heart defects were recruited from the outpatient clinic of a tertiary cardiac centre over a three month period. The questionnaire comprised 10 items of knowledge under three domains: nature of heart disease and its treatment; impact of heart disease on exercise capacity; and infective endocarditis and its prevention. The frequency distribution of the parents' knowledge in the different domains was determined. Univariate analyses and logistic regression were performed to identify significant determinants of knowledge in selected items. Results: While 59% of parents correctly named their child's congenital heart disease, only 28.8% correctly indicated the heart lesion(s) diagrammatically. However, more than 80% of parents were aware of the indications and aims of previous surgical and transcatheter interventions. About half of the parents were aware of possible aetiologies and of the hereditary nature and symptoms attributable to underlying heart disease. Disappointingly, of the 56 parents whose children were taking cardiac medications, only 25 (44.6%) and 4 (7.1%) knew correctly the functions and important side effects of the medications, respectively. With regard to exercise capacity, 59% of parents indicated its level appropriate for the heart lesion. While 26.9% of parents had heard of the term "infective endocarditis", slightly more than half of the parents were aware of the need for antibiotics before dental procedures. Significant determinants of knowledge in the nature of heart disease were cardiac diagnosis, occupation of parents, and their educational level. Logistic regression failed to identify any significant determinants of parental knowledge in the other two domains. Conclusions: Parents of children with congenital heart disease have important knowledge gaps. Our findings suggest that the current educational programme is inadequate and needs to be refined to promote better parental understanding of their child's heart disease, with the ultimate aim of enabling parents to impart such knowledge accurately to their children.
 
ISSN1355-6037
2013 Impact Factor: 6.023
2013 SCImago Journal Rankings: 2.793
 
DOIhttp://dx.doi.org/10.1136/hrt.2003.014092
 
PubMed Central IDPMC1768183
 
ISI Accession Number IDWOS:000220197700019
 
ReferencesReferences in Scopus
 
DC FieldValue
dc.contributor.authorCheuk, DKL
 
dc.contributor.authorWong, SMY
 
dc.contributor.authorChoi, YP
 
dc.contributor.authorChau, AKT
 
dc.contributor.authorCheung, YF
 
dc.date.accessioned2007-01-08T02:30:52Z
 
dc.date.available2007-01-08T02:30:52Z
 
dc.date.issued2004
 
dc.description.abstractObjectives: To assess parents' understanding of their child's congenital heart disease in various knowledge domains and to identify significant determinants of parental knowledge. Design: Cross sectional questionnaire survey. Setting: Tertiary paediatric cardiac centre. Patients: 156 parents of children with relatively simple congenital heart defects were recruited from the outpatient clinic of a tertiary cardiac centre over a three month period. The questionnaire comprised 10 items of knowledge under three domains: nature of heart disease and its treatment; impact of heart disease on exercise capacity; and infective endocarditis and its prevention. The frequency distribution of the parents' knowledge in the different domains was determined. Univariate analyses and logistic regression were performed to identify significant determinants of knowledge in selected items. Results: While 59% of parents correctly named their child's congenital heart disease, only 28.8% correctly indicated the heart lesion(s) diagrammatically. However, more than 80% of parents were aware of the indications and aims of previous surgical and transcatheter interventions. About half of the parents were aware of possible aetiologies and of the hereditary nature and symptoms attributable to underlying heart disease. Disappointingly, of the 56 parents whose children were taking cardiac medications, only 25 (44.6%) and 4 (7.1%) knew correctly the functions and important side effects of the medications, respectively. With regard to exercise capacity, 59% of parents indicated its level appropriate for the heart lesion. While 26.9% of parents had heard of the term "infective endocarditis", slightly more than half of the parents were aware of the need for antibiotics before dental procedures. Significant determinants of knowledge in the nature of heart disease were cardiac diagnosis, occupation of parents, and their educational level. Logistic regression failed to identify any significant determinants of parental knowledge in the other two domains. Conclusions: Parents of children with congenital heart disease have important knowledge gaps. Our findings suggest that the current educational programme is inadequate and needs to be refined to promote better parental understanding of their child's heart disease, with the ultimate aim of enabling parents to impart such knowledge accurately to their children.
 
dc.description.naturepublished_or_final_version
 
dc.format.extent221720 bytes
 
dc.format.extent3357 bytes
 
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dc.format.mimetypeapplication/pdf
 
dc.format.mimetypetext/plain
 
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dc.identifier.citationHeart, 2004, v. 90 n. 4, p. 435-439 [How to Cite?]
DOI: http://dx.doi.org/10.1136/hrt.2003.014092
 
dc.identifier.doihttp://dx.doi.org/10.1136/hrt.2003.014092
 
dc.identifier.epage439
 
dc.identifier.hkuros85717
 
dc.identifier.isiWOS:000220197700019
 
dc.identifier.issn1355-6037
2013 Impact Factor: 6.023
2013 SCImago Journal Rankings: 2.793
 
dc.identifier.issue4
 
dc.identifier.openurl
 
dc.identifier.pmcidPMC1768183
 
dc.identifier.pmid15020523
 
dc.identifier.scopuseid_2-s2.0-1642463876
 
dc.identifier.spage435
 
dc.identifier.urihttp://hdl.handle.net/10722/42170
 
dc.identifier.volume90
 
dc.languageeng
 
dc.publisherB M J Publishing Group. The Journal's web site is located at http://heart.bmjjournals.com/
 
dc.publisher.placeUnited Kingdom
 
dc.relation.ispartofHeart
 
dc.relation.referencesReferences in Scopus
 
dc.rightsHeart. Copyright © B M J Publishing Group.
 
dc.rightsCreative Commons: Attribution 3.0 Hong Kong License
 
dc.subject.meshHealth knowledge, attitudes, practice
 
dc.subject.meshHeart defects, congenital - psychology
 
dc.subject.meshParents - psychology
 
dc.subject.meshRegression analysis
 
dc.subject.meshExercise tolerance
 
dc.titleParents' understanding of their child's congenital heart disease
 
dc.typeArticle
 
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Author Affiliations
  1. The University of Hong Kong