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Conference Paper: Pilot evaluation of a decision aid for Chinese women considering breast cancer surgery for localized breast cancer

TitlePilot evaluation of a decision aid for Chinese women considering breast cancer surgery for localized breast cancer
Authors
Issue Date2009
PublisherJohn Wiley & Sons Ltd. The Journal's web site is located at http://www3.interscience.wiley.com/cgi-bin/jhome/5807
Citation
The IPOS 11th World Congress of Psycho-Oncology, Vienna, Austria, 21–25 June 2009. In Psycho-Oncology, 2009, v. 18 n. S2, p. s318 How to Cite?
AbstractBACKGROUND: We developed and piloted adecision aid (DA) booklet for Chinese women withlocalized breast cancer (BC) considering breastcancer surgery. This is probably the first DAdesigned specifically for non-Caucasian cancerpatients. The current study tested the acceptabilityof the DA booklet to assist Chinese women facingbreast cancer treatment decision-making (TDM).METHOD: Chinese women diagnosed with loca-lized breast cancer were invited to evaluate the DAbooklet. A total of 95 women received the DAbooklet at the end of their initial diagnosticconsultation. Questionnaires evaluating attitudestoward the DA booklet, patients’ understanding ofBC treatment and preference for decision involve-ment were completed four days after the initialconsultation. The questionnaire was completedusing a face-to-face interview. RESULTS: Mostwomen (88%) had read/partly read the DA book-let; 73% found it useful in choosing BC surgery.Most found that the DA was easy to understand(89%), facilitated their understanding of informa-tion obtained from their surgeon (87%), and wasnot anxiety provoking (77%). Women found theDA eased TDM (84%). Women who read (mean7.17) or partly read (mean 4.71) the DA had abetter understanding of BC than those who did not read the booklet (mean 2.91, po.001). Womenpreferring passive participation were less likely toread the booklet compared to those preferringactive/shared decision making participation(p 5 .025). CONCLUSIONS: Our findings suggestthat the DA booklet is acceptable to Chinesewomen deciding for breast cancer surgery. Con-sistent with previous studies, the DA bookletincreased Chinese women’s knowledge of BC andits treatment. RESEARCH IMPLICATIONS: TheDA booklet has been revised to make it moreparsimonious and enhance its clarity, particularlyfor sub-literate women. The revised DA booklet isbeing evaluated in a randomized controlled trial.CLINICAL IMPLICATIONS: Previous studiesshowed difficulties in treatment decision making(TDM) leads to persistent psychological distressamong Chinese women with BC. If effective inimproving health outcomes, the DA could be usedin facilitate TDM, thereby minimizing subsequentpsychological distress. ACKNOWLEDGEMENTOF FUNDING: This study was funded by HongKong Cancer Fund.
Persistent Identifierhttp://hdl.handle.net/10722/61809
ISSN
2015 Impact Factor: 3.256
2015 SCImago Journal Rankings: 1.904

 

DC FieldValueLanguage
dc.contributor.authorLam, WWT-
dc.contributor.authorChan, M-
dc.contributor.authorKwong, A-
dc.contributor.authorOr, A-
dc.contributor.authorSuen, D-
dc.contributor.authorButow, PN-
dc.contributor.authorFielding, R-
dc.date.accessioned2010-07-13T03:47:44Z-
dc.date.available2010-07-13T03:47:44Z-
dc.date.issued2009-
dc.identifier.citationThe IPOS 11th World Congress of Psycho-Oncology, Vienna, Austria, 21–25 June 2009. In Psycho-Oncology, 2009, v. 18 n. S2, p. s318-
dc.identifier.issn1057-9249-
dc.identifier.urihttp://hdl.handle.net/10722/61809-
dc.description.abstractBACKGROUND: We developed and piloted adecision aid (DA) booklet for Chinese women withlocalized breast cancer (BC) considering breastcancer surgery. This is probably the first DAdesigned specifically for non-Caucasian cancerpatients. The current study tested the acceptabilityof the DA booklet to assist Chinese women facingbreast cancer treatment decision-making (TDM).METHOD: Chinese women diagnosed with loca-lized breast cancer were invited to evaluate the DAbooklet. A total of 95 women received the DAbooklet at the end of their initial diagnosticconsultation. Questionnaires evaluating attitudestoward the DA booklet, patients’ understanding ofBC treatment and preference for decision involve-ment were completed four days after the initialconsultation. The questionnaire was completedusing a face-to-face interview. RESULTS: Mostwomen (88%) had read/partly read the DA book-let; 73% found it useful in choosing BC surgery.Most found that the DA was easy to understand(89%), facilitated their understanding of informa-tion obtained from their surgeon (87%), and wasnot anxiety provoking (77%). Women found theDA eased TDM (84%). Women who read (mean7.17) or partly read (mean 4.71) the DA had abetter understanding of BC than those who did not read the booklet (mean 2.91, po.001). Womenpreferring passive participation were less likely toread the booklet compared to those preferringactive/shared decision making participation(p 5 .025). CONCLUSIONS: Our findings suggestthat the DA booklet is acceptable to Chinesewomen deciding for breast cancer surgery. Con-sistent with previous studies, the DA bookletincreased Chinese women’s knowledge of BC andits treatment. RESEARCH IMPLICATIONS: TheDA booklet has been revised to make it moreparsimonious and enhance its clarity, particularlyfor sub-literate women. The revised DA booklet isbeing evaluated in a randomized controlled trial.CLINICAL IMPLICATIONS: Previous studiesshowed difficulties in treatment decision making(TDM) leads to persistent psychological distressamong Chinese women with BC. If effective inimproving health outcomes, the DA could be usedin facilitate TDM, thereby minimizing subsequentpsychological distress. ACKNOWLEDGEMENTOF FUNDING: This study was funded by HongKong Cancer Fund.-
dc.languageeng-
dc.publisherJohn Wiley & Sons Ltd. The Journal's web site is located at http://www3.interscience.wiley.com/cgi-bin/jhome/5807-
dc.relation.ispartofPsycho-Oncology-
dc.rightsPsycho-Oncology. Copyright © John Wiley & Sons Ltd.-
dc.rightsSpecial Statement for Preprint only Before publication: 'This is a preprint of an article accepted for publication in [The Journal of Pathology] Copyright © ([year]) ([Pathological Society of Great Britain and Ireland])'. After publication: the preprint notice should be amended to follows: 'This is a preprint of an article published in [include the complete citation information for the final version of the Contribution as published in the print edition of the Journal]' For Cochrane Library/ Cochrane Database of Systematic Reviews, add statement & acknowledgement : ‘This review is published as a Cochrane Review in the Cochrane Database of Systematic Reviews 20XX, Issue X. Cochrane Reviews are regularly updated as new evidence emerges and in response to comments and criticisms, and the Cochrane Database of Systematic Reviews should be consulted for the most recent version of the Review.’ Please include reference to the Review and hyperlink to the original version using the following format e.g. Authors. Title of Review. Cochrane Database of Systematic Reviews 20XX, Issue #. Art. No.: CD00XXXX. DOI: 10.1002/14651858.CD00XXXX (insert persistent link to the article by using the URL: http://dx.doi.org/10.1002/14651858.CD00XXXX) (This statement should refer to the most recent issue of the Cochrane Database of Systematic Reviews in which the Review published.)-
dc.titlePilot evaluation of a decision aid for Chinese women considering breast cancer surgery for localized breast cancer-
dc.typeConference_Paper-
dc.identifier.emailLam, WWT: wwtlam@hku.hk-
dc.identifier.emailKwong, A: avakwong@hkucc.hku.hk-
dc.identifier.emailFielding, R: fielding@hkusua.hku.hk-
dc.identifier.authorityLam, WWT=rp00443-
dc.identifier.authorityKwong, A=rp01734-
dc.identifier.authorityFielding, R=rp00339-
dc.description.naturelink_to_OA_fulltext-
dc.identifier.doi10.1002/pon.1594-
dc.identifier.hkuros162108-
dc.identifier.volume18-
dc.identifier.issueS2-
dc.identifier.spages318-
dc.identifier.epages318-
dc.publisher.placeUnited Kingdom-

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