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Article: China: concurring regulation of cross-border genomic data sharing for statist control and individual protection

TitleChina: concurring regulation of cross-border genomic data sharing for statist control and individual protection
Authors
Issue Date2018
PublisherSpringer Verlag. The Journal's web site is located at http://link.springer.de/link/service/journals/00439/index.htm
Citation
Human Genetics, 2018, v. 137 n. 8, p. 605-615 How to Cite?
AbstractThis paper reviews the major legal instruments and self-regulations that bear heavily on the cross-border sharing of genomic data in China. It first maps out three overlapping frameworks on genomic data and analyzes their underpinning policy goals. Subsequent sections examine the regulatory approaches with respect to five aspects of responsible use and sharing of genomic data, namely, consent, privacy, security, compatible processing, and oversight. It argues that substantial centralised control exerted by the state is, and would probably remain, the dominant feature of genomic data governance in China, though concerns of individual protection are gaining momentum. Rather than revolving around a simplistic antinomy between privacy preservation and open science, the regulatory landscape is mainly shaped by the tension between government desires for national security, state competitiveness, and public health benefits.
Persistent Identifierhttp://hdl.handle.net/10722/263494
ISSN
2019 Impact Factor: 5.743
2015 SCImago Journal Rankings: 2.931
ISI Accession Number ID
Errata

 

DC FieldValueLanguage
dc.contributor.authorChen, YC-
dc.contributor.authorSong, L-
dc.date.accessioned2018-10-22T07:39:52Z-
dc.date.available2018-10-22T07:39:52Z-
dc.date.issued2018-
dc.identifier.citationHuman Genetics, 2018, v. 137 n. 8, p. 605-615-
dc.identifier.issn0340-6717-
dc.identifier.urihttp://hdl.handle.net/10722/263494-
dc.description.abstractThis paper reviews the major legal instruments and self-regulations that bear heavily on the cross-border sharing of genomic data in China. It first maps out three overlapping frameworks on genomic data and analyzes their underpinning policy goals. Subsequent sections examine the regulatory approaches with respect to five aspects of responsible use and sharing of genomic data, namely, consent, privacy, security, compatible processing, and oversight. It argues that substantial centralised control exerted by the state is, and would probably remain, the dominant feature of genomic data governance in China, though concerns of individual protection are gaining momentum. Rather than revolving around a simplistic antinomy between privacy preservation and open science, the regulatory landscape is mainly shaped by the tension between government desires for national security, state competitiveness, and public health benefits.-
dc.languageeng-
dc.publisherSpringer Verlag. The Journal's web site is located at http://link.springer.de/link/service/journals/00439/index.htm-
dc.relation.ispartofHuman Genetics-
dc.rightsThe final publication is available at Springer via http://dx.doi.org/[insert DOI]-
dc.rightsThis work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.-
dc.titleChina: concurring regulation of cross-border genomic data sharing for statist control and individual protection-
dc.typeArticle-
dc.identifier.emailChen, YC: yongxi@hku.hk-
dc.identifier.authorityChen, YC=rp02385-
dc.description.naturepublished_or_final_version-
dc.identifier.doi10.1007/s00439-018-1903-2-
dc.identifier.scopuseid_2-s2.0-85049965972-
dc.identifier.hkuros293825-
dc.identifier.volume137-
dc.identifier.issue8-
dc.identifier.spage605-
dc.identifier.epage615-
dc.identifier.isiWOS:000444002500007-
dc.publisher.placeGermany-
dc.relation.erratumdoi:10.1007/s00439-018-1926-8-

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