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- Scopus: eid_2-s2.0-84877045397
- PMID: 23520913
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Article: Legal aspects of genetic databases for international biomedical research: the example of the International Cancer Genome Consortium (ICGC).
Title | Legal aspects of genetic databases for international biomedical research: the example of the International Cancer Genome Consortium (ICGC). |
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Authors | |
Issue Date | 2012 |
Citation | Revista de derecho y genoma humano = Law and the human genome review / Cátedra de Derecho y Genoma Humano/Fundación BBV-Diputación Foral de Bizkaia, 2012, n. 37, p. 15-34 How to Cite? |
Abstract | There is a noticeable lack of international regulation on personal data exchange and management in research. This article sheds light in this area by describing how the International Cancer Genome Consortium is developing policies and procedures to address the ethical and legal issues raised by the international transfer of data and results. These policies and procedures aim, first and most importantly, to safeguard the interests of the research participants and other involved stakeholders and, secondly, to facilitate the sharing of data and results to realize greater benefits from this kind of internationally collaborative genetic research. |
Persistent Identifier | http://hdl.handle.net/10722/200132 |
ISSN |
DC Field | Value | Language |
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dc.contributor.author | Romeo-Casabona, Carlos María | - |
dc.contributor.author | Nicolás, Pilar | - |
dc.contributor.author | Knoppers, Bartha Maria | - |
dc.contributor.author | Joly, Yann | - |
dc.contributor.author | Wallace, Susan E. | - |
dc.contributor.author | Chalmers, Don R C | - |
dc.contributor.author | Dyke, Stephanie O M | - |
dc.contributor.author | Kennedy, Karen L. | - |
dc.contributor.author | Troncoso, Antonio | - |
dc.contributor.author | Kaan, Terry | - |
dc.contributor.author | Rial-Sebbag, Emmanuelle | - |
dc.date.accessioned | 2014-07-26T23:11:10Z | - |
dc.date.available | 2014-07-26T23:11:10Z | - |
dc.date.issued | 2012 | - |
dc.identifier.citation | Revista de derecho y genoma humano = Law and the human genome review / Cátedra de Derecho y Genoma Humano/Fundación BBV-Diputación Foral de Bizkaia, 2012, n. 37, p. 15-34 | - |
dc.identifier.issn | 1134-7198 | - |
dc.identifier.uri | http://hdl.handle.net/10722/200132 | - |
dc.description.abstract | There is a noticeable lack of international regulation on personal data exchange and management in research. This article sheds light in this area by describing how the International Cancer Genome Consortium is developing policies and procedures to address the ethical and legal issues raised by the international transfer of data and results. These policies and procedures aim, first and most importantly, to safeguard the interests of the research participants and other involved stakeholders and, secondly, to facilitate the sharing of data and results to realize greater benefits from this kind of internationally collaborative genetic research. | - |
dc.language | eng | - |
dc.relation.ispartof | Revista de derecho y genoma humano = Law and the human genome review / Cátedra de Derecho y Genoma Humano/Fundación BBV-Diputación Foral de Bizkaia | - |
dc.title | Legal aspects of genetic databases for international biomedical research: the example of the International Cancer Genome Consortium (ICGC). | - |
dc.type | Article | - |
dc.description.nature | link_to_subscribed_fulltext | - |
dc.identifier.pmid | 23520913 | - |
dc.identifier.scopus | eid_2-s2.0-84877045397 | - |
dc.identifier.issue | 37 | - |
dc.identifier.spage | 15 | - |
dc.identifier.epage | 34 | - |
dc.identifier.issnl | 1134-7198 | - |