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Article: Legal aspects of genetic databases for international biomedical research: the example of the International Cancer Genome Consortium (ICGC).

TitleLegal aspects of genetic databases for international biomedical research: the example of the International Cancer Genome Consortium (ICGC).
Authors
Issue Date2012
Citation
Revista de derecho y genoma humano = Law and the human genome review / Cátedra de Derecho y Genoma Humano/Fundación BBV-Diputación Foral de Bizkaia, 2012, n. 37, p. 15-34 How to Cite?
AbstractThere is a noticeable lack of international regulation on personal data exchange and management in research. This article sheds light in this area by describing how the International Cancer Genome Consortium is developing policies and procedures to address the ethical and legal issues raised by the international transfer of data and results. These policies and procedures aim, first and most importantly, to safeguard the interests of the research participants and other involved stakeholders and, secondly, to facilitate the sharing of data and results to realize greater benefits from this kind of internationally collaborative genetic research.
Persistent Identifierhttp://hdl.handle.net/10722/200132
ISSN
2015 SCImago Journal Rankings: 0.100

 

DC FieldValueLanguage
dc.contributor.authorRomeo-Casabona, Carlos María-
dc.contributor.authorNicolás, Pilar-
dc.contributor.authorKnoppers, Bartha Maria-
dc.contributor.authorJoly, Yann-
dc.contributor.authorWallace, Susan E.-
dc.contributor.authorChalmers, Don R C-
dc.contributor.authorDyke, Stephanie O M-
dc.contributor.authorKennedy, Karen L.-
dc.contributor.authorTroncoso, Antonio-
dc.contributor.authorKaan, Terry-
dc.contributor.authorRial-Sebbag, Emmanuelle-
dc.date.accessioned2014-07-26T23:11:10Z-
dc.date.available2014-07-26T23:11:10Z-
dc.date.issued2012-
dc.identifier.citationRevista de derecho y genoma humano = Law and the human genome review / Cátedra de Derecho y Genoma Humano/Fundación BBV-Diputación Foral de Bizkaia, 2012, n. 37, p. 15-34-
dc.identifier.issn1134-7198-
dc.identifier.urihttp://hdl.handle.net/10722/200132-
dc.description.abstractThere is a noticeable lack of international regulation on personal data exchange and management in research. This article sheds light in this area by describing how the International Cancer Genome Consortium is developing policies and procedures to address the ethical and legal issues raised by the international transfer of data and results. These policies and procedures aim, first and most importantly, to safeguard the interests of the research participants and other involved stakeholders and, secondly, to facilitate the sharing of data and results to realize greater benefits from this kind of internationally collaborative genetic research.-
dc.languageeng-
dc.relation.ispartofRevista de derecho y genoma humano = Law and the human genome review / Cátedra de Derecho y Genoma Humano/Fundación BBV-Diputación Foral de Bizkaia-
dc.titleLegal aspects of genetic databases for international biomedical research: the example of the International Cancer Genome Consortium (ICGC).-
dc.typeArticle-
dc.description.naturelink_to_subscribed_fulltext-
dc.identifier.pmid23520913-
dc.identifier.scopuseid_2-s2.0-84877045397-
dc.identifier.issue37-
dc.identifier.spage15-
dc.identifier.epage34-

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