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Conference Paper: Adult adhd patients’ experiences of impairment, accessing services and treatment management: a qualitative study in England
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TitleAdult adhd patients’ experiences of impairment, accessing services and treatment management: a qualitative study in England
 
AuthorsMatheson, L
Asherson, P
Wong, I
Hodgkins, P
Setyawan, J
Susane, R
Clifford, S
 
KeywordsMedical sciences
Psychiatry and neurology
 
Issue Date2012
 
PublisherElsevier France, Editions Scientifiques et Medicales. The Journal's web site is located at http://www.elsevier.com/locate/eurpsy
 
CitationThe 20th European Congress of Psychiatry (EPA 2012), Prague, Czech Republic, 3-6 March 2012. In European Psychiatry, 2012, v. 27 suppl. 1, abstract no. P-876 [How to Cite?]
 
AbstractINTRODUCTION: There is limited understanding of the health and treatment-related experiences of adults with Attention Deficit Hyperactivity Disorder in England. AIMS: To explore the experiences of adults with ADHD regarding impairment, accessing diagnostic and treatment services, and to compare experiences between patients diagnosed during adulthood and childhood. METHODS: Semi-structured face-to-face interviews were conducted with 30 adults with ADHD, recruited across England. Half of the participants were diagnosed during childhood and the remainder during adulthood. Data was analysed using Thematic Analysis and data saturation was achieved. RESULTS: Getting a diagnosis and accessing ADHD services in adulthood was an 'uphill struggle', often due to negative and sceptical attitudes towards ADHD by healthcare professionals. Many patients struggled for years with misdiagnoses of depression and anxiety, and severe difficulties accessing care and treatment caused a downward spiral into functional impairment in some. Accumulated psychosocial burden was evident as living with undiagnosed ADHD had resulted in a chronic sense of failure and missed potential in many diagnosed from late adolescence onwards. Positive adjustment was facilitated by a younger age at diagnosis. Although medication was perceived as necessary in alleviating impairment, many deemed pharmacological treatment by itself as inadequate. Additional support, especially psychological therapies/psycho-education was strongly desired, yet few patients had access to non-pharmacological treatment. CONCLUSIONS: This study suggests that the unmet needs of adults with ADHD are substantial, particularly in those diagnosed from late adolescence onwards. The findings suggest there is a wide gap between policy and practice in England.
 
DescriptionThis journal supplement contain abstracts of the 20th European Congress of Psychiatry
Theme: Beyond Diversity, Towards Harmony
 
ISSN0924-9338
2013 Impact Factor: 3.210
2013 SCImago Journal Rankings: 1.472
 
DC FieldValue
dc.contributor.authorMatheson, L
 
dc.contributor.authorAsherson, P
 
dc.contributor.authorWong, I
 
dc.contributor.authorHodgkins, P
 
dc.contributor.authorSetyawan, J
 
dc.contributor.authorSusane, R
 
dc.contributor.authorClifford, S
 
dc.date.accessioned2012-09-20T08:21:13Z
 
dc.date.available2012-09-20T08:21:13Z
 
dc.date.issued2012
 
dc.description.abstractINTRODUCTION: There is limited understanding of the health and treatment-related experiences of adults with Attention Deficit Hyperactivity Disorder in England. AIMS: To explore the experiences of adults with ADHD regarding impairment, accessing diagnostic and treatment services, and to compare experiences between patients diagnosed during adulthood and childhood. METHODS: Semi-structured face-to-face interviews were conducted with 30 adults with ADHD, recruited across England. Half of the participants were diagnosed during childhood and the remainder during adulthood. Data was analysed using Thematic Analysis and data saturation was achieved. RESULTS: Getting a diagnosis and accessing ADHD services in adulthood was an 'uphill struggle', often due to negative and sceptical attitudes towards ADHD by healthcare professionals. Many patients struggled for years with misdiagnoses of depression and anxiety, and severe difficulties accessing care and treatment caused a downward spiral into functional impairment in some. Accumulated psychosocial burden was evident as living with undiagnosed ADHD had resulted in a chronic sense of failure and missed potential in many diagnosed from late adolescence onwards. Positive adjustment was facilitated by a younger age at diagnosis. Although medication was perceived as necessary in alleviating impairment, many deemed pharmacological treatment by itself as inadequate. Additional support, especially psychological therapies/psycho-education was strongly desired, yet few patients had access to non-pharmacological treatment. CONCLUSIONS: This study suggests that the unmet needs of adults with ADHD are substantial, particularly in those diagnosed from late adolescence onwards. The findings suggest there is a wide gap between policy and practice in England.
 
dc.description.naturepostprint
 
dc.descriptionThis journal supplement contain abstracts of the 20th European Congress of Psychiatry
 
dc.descriptionTheme: Beyond Diversity, Towards Harmony
 
dc.description.otherThe 20th European Congress of Psychiatry (EPA 2012), Prague, Czech Republic, 3-6 March 2012. In European Psychiatry, 2012, v. 27 suppl. 1, abstract no. P-876
 
dc.identifier.citationThe 20th European Congress of Psychiatry (EPA 2012), Prague, Czech Republic, 3-6 March 2012. In European Psychiatry, 2012, v. 27 suppl. 1, abstract no. P-876 [How to Cite?]
 
dc.identifier.hkuros207491
 
dc.identifier.issn0924-9338
2013 Impact Factor: 3.210
2013 SCImago Journal Rankings: 1.472
 
dc.identifier.issuesuppl. 1
 
dc.identifier.urihttp://hdl.handle.net/10722/165610
 
dc.identifier.volume27
 
dc.languageeng
 
dc.publisherElsevier France, Editions Scientifiques et Medicales. The Journal's web site is located at http://www.elsevier.com/locate/eurpsy
 
dc.publisher.placeFrance
 
dc.relation.ispartofEuropean Psychiatry
 
dc.rightsNOTICE: this is the author’s version of a work that was accepted for publication in European Psychiatry. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in European Psychiatry, v.27, suppl. 1, 2012.
 
dc.rightsCreative Commons: Attribution 3.0 Hong Kong License
 
dc.subjectMedical sciences
 
dc.subjectPsychiatry and neurology
 
dc.titleAdult adhd patients’ experiences of impairment, accessing services and treatment management: a qualitative study in England
 
dc.typeConference_Paper
 
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<item><contributor.author>Matheson, L</contributor.author>
<contributor.author>Asherson, P</contributor.author>
<contributor.author>Wong, I</contributor.author>
<contributor.author>Hodgkins, P</contributor.author>
<contributor.author>Setyawan, J</contributor.author>
<contributor.author>Susane, R</contributor.author>
<contributor.author>Clifford, S</contributor.author>
<date.accessioned>2012-09-20T08:21:13Z</date.accessioned>
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<date.issued>2012</date.issued>
<identifier.citation>The 20th European Congress of Psychiatry (EPA 2012), Prague, Czech Republic, 3-6 March 2012. In European Psychiatry, 2012, v. 27 suppl. 1, abstract no. P-876</identifier.citation>
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<description>Theme: Beyond Diversity, Towards Harmony</description>
<description.abstract>INTRODUCTION: There is limited understanding of the health and treatment-related experiences of adults with Attention Deficit Hyperactivity Disorder in England. AIMS: To explore the experiences of adults with ADHD regarding impairment, accessing diagnostic and treatment services, and to compare experiences between patients diagnosed during adulthood and childhood. METHODS: Semi-structured face-to-face interviews were conducted with 30 adults with ADHD, recruited across England. Half of the participants were diagnosed during childhood and the remainder during adulthood. Data was analysed using Thematic Analysis and data saturation was achieved. RESULTS: Getting a diagnosis and accessing ADHD services in adulthood was an &apos;uphill struggle&apos;, often due to negative and sceptical attitudes towards ADHD by healthcare professionals. Many patients struggled for years with misdiagnoses of depression and anxiety, and severe difficulties accessing care and treatment caused a downward spiral into functional impairment in some. Accumulated psychosocial burden was evident as living with undiagnosed ADHD had resulted in a chronic sense of failure and missed potential in many diagnosed from late adolescence onwards. Positive adjustment was facilitated by a younger age at diagnosis. Although medication was perceived as necessary in alleviating impairment, many deemed pharmacological treatment by itself as inadequate. Additional support, especially psychological therapies/psycho-education was strongly desired, yet few patients had access to non-pharmacological treatment. CONCLUSIONS: This study suggests that the unmet needs of adults with ADHD are substantial, particularly in those diagnosed from late adolescence onwards. The findings suggest there is a wide gap between policy and practice in England.</description.abstract>
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<rights>NOTICE: this is the author&#8217;s version of a work that was accepted for publication in European Psychiatry. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in European Psychiatry, v.27, suppl. 1, 2012.</rights>
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<subject>Medical sciences</subject>
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