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Article: Health-related quality of life of children with epilepsy in Hong Kong: How does it compare with that of youth with epilepsy in Canada?

TitleHealth-related quality of life of children with epilepsy in Hong Kong: How does it compare with that of youth with epilepsy in Canada?
Authors
KeywordsCanadian
Child
Chinese
Cross-cultural difference
Epilepsy
Quality of life
Issue Date2008
PublisherAcademic Press. The Journal's web site is located at http://www.elsevier.com/locate/yebeh
Citation
Epilepsy And Behavior, 2008, v. 12 n. 3, p. 419-426 How to Cite?
AbstractObjective: The primary aim of our study was to compare the health-related quality of life (HRQL) of children with epilepsy in Hong Kong with that of children with epilepsy in Canada, and to explore possible factors affecting these findings. A second interest was to determine agreement between proxy reports and self-ratings among children with epilepsy in Hong Kong, compare these with findings in Canada, and identify factors that influence the concordance. Methods: Child self-report and parent-proxy questionnaires on an epilepsy-specific HRQL measure, appropriately translated and validated in Chinese, were administered to 266 Hong Kong children and their parents. An unpaired t test was used to compare the scores with published results from 381 Canadian children and their parents, who used the original English version of the measure. Demographic characteristics of the two groups were compared using t tests, χ 2 tests, and Fisher's exact tests. Agreement between parents' and children's scores was evaluated with intraclass correlation coefficients (ICCs) and standardized response means (SRMs). The total HRQL score differences between parents and children in Hong Kong were compared with those in Canada using an unpaired t test. Factors that might affect the parent-child score difference were studied using Pearson correlation analysis, χ 2 test, and analysis of variance. Factors studied included: sex, current age, age at diagnosis, duration of epilepsy, number of antiepileptic drugs used, type of seizure, seizure severity, cognition of the child, the type of school attended, presence of neurological problems, presence of behavioral problems, recent health care usage, education and employment status of both parents, housing status of the family, and relationship of the proxy respondent to the child. Results: (1) In contrast to the Canadian sample, Hong Kong children with epilepsy were older (P < 0.01), had a longer duration of epilepsy (P < 0.01) and less severe seizures (P < 0.01), and were more likely to attend normal schools (P < 0.01). Children in Hong Kong reported more interpersonal/social difficulties (P < 0.01), more worries (P < 0.01), and more secrecy about their epilepsy (P < 0.01). Parents in Hong Kong believed that their children perceived more worries (P < 0.01) and were more secretive about their epilepsy (P < 0.01). (2) Moderate to good agreement between parent-proxy response scores and child self-report scores was demonstrated (ICC = 0.50-0.69, SRM = 0.19-0.33). The total HRQL score differences between parent and child in Hong Kong were not different from those in Canada. None of the factors studied were related to the parent-child score difference. Conclusions: Youth with epilepsy in Hong Kong and their parents reported poorer quality of life than children with epilepsy in Canada. Further studies are necessary to identify the determinants of HRQL in children with epilepsy in different cultures. Acceptable agreement between the two ratings suggests that proxy reports can be used when child self-reports cannot be obtained. © 2007 Elsevier Inc. All rights reserved.
Persistent Identifierhttp://hdl.handle.net/10722/143581
ISSN
2015 Impact Factor: 2.332
2015 SCImago Journal Rankings: 1.106
ISI Accession Number ID
References

 

DC FieldValueLanguage
dc.contributor.authorYam, WKLen_HK
dc.contributor.authorRonen, GMen_HK
dc.contributor.authorCherk, SWWen_HK
dc.contributor.authorRosenbaum, Pen_HK
dc.contributor.authorChan, KYen_HK
dc.contributor.authorStreiner, DLen_HK
dc.contributor.authorCheng, SWWen_HK
dc.contributor.authorFung, CWen_HK
dc.contributor.authorHo, JCSen_HK
dc.contributor.authorKwong, KLen_HK
dc.contributor.authorMa, LCKen_HK
dc.contributor.authorMa, DKHen_HK
dc.contributor.authorTsui, KWen_HK
dc.contributor.authorWong, Ven_HK
dc.contributor.authorWong, TYLen_HK
dc.date.accessioned2011-12-12T03:52:05Z-
dc.date.available2011-12-12T03:52:05Z-
dc.date.issued2008en_HK
dc.identifier.citationEpilepsy And Behavior, 2008, v. 12 n. 3, p. 419-426en_HK
dc.identifier.issn1525-5050en_HK
dc.identifier.urihttp://hdl.handle.net/10722/143581-
dc.description.abstractObjective: The primary aim of our study was to compare the health-related quality of life (HRQL) of children with epilepsy in Hong Kong with that of children with epilepsy in Canada, and to explore possible factors affecting these findings. A second interest was to determine agreement between proxy reports and self-ratings among children with epilepsy in Hong Kong, compare these with findings in Canada, and identify factors that influence the concordance. Methods: Child self-report and parent-proxy questionnaires on an epilepsy-specific HRQL measure, appropriately translated and validated in Chinese, were administered to 266 Hong Kong children and their parents. An unpaired t test was used to compare the scores with published results from 381 Canadian children and their parents, who used the original English version of the measure. Demographic characteristics of the two groups were compared using t tests, χ 2 tests, and Fisher's exact tests. Agreement between parents' and children's scores was evaluated with intraclass correlation coefficients (ICCs) and standardized response means (SRMs). The total HRQL score differences between parents and children in Hong Kong were compared with those in Canada using an unpaired t test. Factors that might affect the parent-child score difference were studied using Pearson correlation analysis, χ 2 test, and analysis of variance. Factors studied included: sex, current age, age at diagnosis, duration of epilepsy, number of antiepileptic drugs used, type of seizure, seizure severity, cognition of the child, the type of school attended, presence of neurological problems, presence of behavioral problems, recent health care usage, education and employment status of both parents, housing status of the family, and relationship of the proxy respondent to the child. Results: (1) In contrast to the Canadian sample, Hong Kong children with epilepsy were older (P < 0.01), had a longer duration of epilepsy (P < 0.01) and less severe seizures (P < 0.01), and were more likely to attend normal schools (P < 0.01). Children in Hong Kong reported more interpersonal/social difficulties (P < 0.01), more worries (P < 0.01), and more secrecy about their epilepsy (P < 0.01). Parents in Hong Kong believed that their children perceived more worries (P < 0.01) and were more secretive about their epilepsy (P < 0.01). (2) Moderate to good agreement between parent-proxy response scores and child self-report scores was demonstrated (ICC = 0.50-0.69, SRM = 0.19-0.33). The total HRQL score differences between parent and child in Hong Kong were not different from those in Canada. None of the factors studied were related to the parent-child score difference. Conclusions: Youth with epilepsy in Hong Kong and their parents reported poorer quality of life than children with epilepsy in Canada. Further studies are necessary to identify the determinants of HRQL in children with epilepsy in different cultures. Acceptable agreement between the two ratings suggests that proxy reports can be used when child self-reports cannot be obtained. © 2007 Elsevier Inc. All rights reserved.en_HK
dc.languageengen_US
dc.publisherAcademic Press. The Journal's web site is located at http://www.elsevier.com/locate/yebehen_HK
dc.relation.ispartofEpilepsy and Behavioren_HK
dc.subjectCanadianen_HK
dc.subjectChilden_HK
dc.subjectChineseen_HK
dc.subjectCross-cultural differenceen_HK
dc.subjectEpilepsyen_HK
dc.subjectQuality of lifeen_HK
dc.subject.meshAdolescenten_US
dc.subject.meshCanada/epidemiologyen_US
dc.subject.meshChilden_US
dc.subject.mesh*Cross-Cultural Comparisonen_US
dc.subject.meshDisability Evaluationen_US
dc.subject.meshEpilepsy/*epidemiology/*psychologyen_US
dc.subject.meshFemaleen_US
dc.subject.mesh*Health Statusen_US
dc.subject.meshHong Kong/epidemiologyen_US
dc.subject.meshHumansen_US
dc.subject.meshMaleen_US
dc.subject.meshParentsen_US
dc.subject.mesh*Quality of Lifeen_US
dc.subject.meshQuestionnairesen_US
dc.subject.meshSickness Impact Profileen_US
dc.titleHealth-related quality of life of children with epilepsy in Hong Kong: How does it compare with that of youth with epilepsy in Canada?en_HK
dc.typeArticleen_HK
dc.identifier.emailWong, V:vcnwong@hku.hken_HK
dc.identifier.authorityWong, V=rp00334en_HK
dc.description.naturelink_to_subscribed_fulltext-
dc.identifier.doi10.1016/j.yebeh.2007.11.007en_HK
dc.identifier.pmid18158271en_HK
dc.identifier.scopuseid_2-s2.0-40649128106en_HK
dc.identifier.hkuros141209-
dc.relation.referenceshttp://www.scopus.com/mlt/select.url?eid=2-s2.0-40649128106&selection=ref&src=s&origin=recordpageen_HK
dc.identifier.volume12en_HK
dc.identifier.issue3en_HK
dc.identifier.spage419en_HK
dc.identifier.epage426en_HK
dc.identifier.isiWOS:000254553900010-
dc.publisher.placeUnited Statesen_HK
dc.identifier.scopusauthoridYam, WKL=10439491400en_HK
dc.identifier.scopusauthoridRonen, GM=7004060941en_HK
dc.identifier.scopusauthoridCherk, SWW=15072516700en_HK
dc.identifier.scopusauthoridRosenbaum, P=7103286250en_HK
dc.identifier.scopusauthoridChan, KY=36985741000en_HK
dc.identifier.scopusauthoridStreiner, DL=35243874100en_HK
dc.identifier.scopusauthoridCheng, SWW=23097212000en_HK
dc.identifier.scopusauthoridFung, CW=7102443786en_HK
dc.identifier.scopusauthoridHo, JCS=7402650057en_HK
dc.identifier.scopusauthoridKwong, KL=7103035460en_HK
dc.identifier.scopusauthoridMa, LCK=7403574473en_HK
dc.identifier.scopusauthoridMa, DKH=15073211500en_HK
dc.identifier.scopusauthoridTsui, KW=14020969600en_HK
dc.identifier.scopusauthoridWong, V=7202525632en_HK
dc.identifier.scopusauthoridWong, TYL=23098844100en_HK

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