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Article: Development and pilot-testing of a Decision Aid for use among Chinese women facing breast cancer surgery

TitleDevelopment and pilot-testing of a Decision Aid for use among Chinese women facing breast cancer surgery
Authors
KeywordsBreast cancer surgery
Chinese women
Decision Aid
Pilot-testing
Issue Date2011
PublisherBlackwell Publishing Ltd. The Journal's web site is located at http://www.blackwellpublishing.com/journals/HEX
Citation
Health Expectations, 2011, v. 14 n. 4, p. 405-416 How to Cite?
AbstractBackground Women choosing breast cancer surgery encounter treatment decision-making (TDM) difficulties, which can cause psychological distress. Decision Aids (DAs) may facilitate TDM, but there are no DAs designed for Chinese populations. We developed a DA for Chinese women newly diagnosed with breast cancer, for use during the initial surgical consultation. Aims Conduct a pilot study to assess the DA acceptability and utility among Chinese women diagnosed with breast cancer. Methods Women preferred the DA in booklet format. A booklet was developed and revised and evaluated in two consecutive pilot studies (P1 and P2). On concluding their initial diagnostic consultation, 95 and 38 Chinese women newly diagnosed with breast cancer received the draft and revised draft DA booklet, respectively. Four-day post-consultation, women had questionnaires read out to them and to which they responded assessing attitudes towards the DA and their understanding of treatment options. Results The original DA was read/partially read by 66/22% (n=84) of women, whilst the revised version was read/partially read by 74/16% (n=35), including subliterate women (χ 2=0.76, P=0.679). Knowledge scores varied with the extent the booklet was read (P1: F=12.68, d.f. 2, P<0.001; P2: F=3.744, d.f. 2, P=0.034). The revised, shorter version was graphically rich and resulted in improved perceived utility, [except for the 'treatment options' (χ 2= 5.50, P=0.019) and 'TDM guidance' (χ 2= 8.19, P=0.004) sections] without increasing anxiety (F=0.689, P=0.408; F=3.45, P=0.073). Conclusion The DA was perceived as acceptable and useful for most women. The DA effectiveness is currently being evaluated using a randomized controlled trial. © 2011 Blackwell Publishing Ltd.
Persistent Identifierhttp://hdl.handle.net/10722/134477
ISSN
2015 Impact Factor: 3.207
2015 SCImago Journal Rankings: 0.767
ISI Accession Number ID
Funding AgencyGrant Number
Hong Kong Cancer Fund
Funding Information:

This work was funded by Hong Kong Cancer Fund 2007/2008.

References

 

DC FieldValueLanguage
dc.contributor.authorAu, AHen_HK
dc.contributor.authorLam, WWen_HK
dc.contributor.authorChan, MCen_HK
dc.contributor.authorOr, AYen_HK
dc.contributor.authorKwong, Aen_HK
dc.contributor.authorSuen, Den_HK
dc.contributor.authorWong, ALen_HK
dc.contributor.authorJuraskova, Ien_HK
dc.contributor.authorWong, TWTen_HK
dc.contributor.authorFielding, Ren_HK
dc.date.accessioned2011-06-17T09:21:40Z-
dc.date.available2011-06-17T09:21:40Z-
dc.date.issued2011en_HK
dc.identifier.citationHealth Expectations, 2011, v. 14 n. 4, p. 405-416en_HK
dc.identifier.issn1369-6513en_HK
dc.identifier.urihttp://hdl.handle.net/10722/134477-
dc.description.abstractBackground Women choosing breast cancer surgery encounter treatment decision-making (TDM) difficulties, which can cause psychological distress. Decision Aids (DAs) may facilitate TDM, but there are no DAs designed for Chinese populations. We developed a DA for Chinese women newly diagnosed with breast cancer, for use during the initial surgical consultation. Aims Conduct a pilot study to assess the DA acceptability and utility among Chinese women diagnosed with breast cancer. Methods Women preferred the DA in booklet format. A booklet was developed and revised and evaluated in two consecutive pilot studies (P1 and P2). On concluding their initial diagnostic consultation, 95 and 38 Chinese women newly diagnosed with breast cancer received the draft and revised draft DA booklet, respectively. Four-day post-consultation, women had questionnaires read out to them and to which they responded assessing attitudes towards the DA and their understanding of treatment options. Results The original DA was read/partially read by 66/22% (n=84) of women, whilst the revised version was read/partially read by 74/16% (n=35), including subliterate women (χ 2=0.76, P=0.679). Knowledge scores varied with the extent the booklet was read (P1: F=12.68, d.f. 2, P<0.001; P2: F=3.744, d.f. 2, P=0.034). The revised, shorter version was graphically rich and resulted in improved perceived utility, [except for the 'treatment options' (χ 2= 5.50, P=0.019) and 'TDM guidance' (χ 2= 8.19, P=0.004) sections] without increasing anxiety (F=0.689, P=0.408; F=3.45, P=0.073). Conclusion The DA was perceived as acceptable and useful for most women. The DA effectiveness is currently being evaluated using a randomized controlled trial. © 2011 Blackwell Publishing Ltd.en_HK
dc.languageengen_US
dc.publisherBlackwell Publishing Ltd. The Journal's web site is located at http://www.blackwellpublishing.com/journals/HEXen_HK
dc.relation.ispartofHealth Expectationsen_HK
dc.rightsThe definitive version is available at www.blackwell-synergy.com-
dc.subjectBreast cancer surgeryen_HK
dc.subjectChinese womenen_HK
dc.subjectDecision Aiden_HK
dc.subjectPilot-testingen_HK
dc.titleDevelopment and pilot-testing of a Decision Aid for use among Chinese women facing breast cancer surgeryen_HK
dc.typeArticleen_HK
dc.identifier.openurlhttp://library.hku.hk:4550/resserv?sid=HKU:IR&issn=1369-6513&volume=14&issue=4&spage=405&epage=416&date=2011&atitle=Development+and+pilot-testing+of+a+Decision+Aid+for+use+among+Chinese+women+facing+breast+cancer+surgery-
dc.identifier.emailLam, WW: wwtlam@hku.hken_HK
dc.identifier.emailKwong, A: avakwong@hkucc.hku.hken_HK
dc.identifier.emailFielding, R: fielding@hku.hken_HK
dc.identifier.authorityLam, WW=rp00443en_HK
dc.identifier.authorityKwong, A=rp01734en_HK
dc.identifier.authorityFielding, R=rp00339en_HK
dc.description.naturelink_to_subscribed_fulltext-
dc.identifier.doi10.1111/j.1369-7625.2010.00655.xen_HK
dc.identifier.pmid21223468-
dc.identifier.scopuseid_2-s2.0-81355138100en_HK
dc.identifier.hkuros185753en_US
dc.identifier.hkuros198010-
dc.relation.referenceshttp://www.scopus.com/mlt/select.url?eid=2-s2.0-81355138100&selection=ref&src=s&origin=recordpageen_HK
dc.identifier.volume14en_HK
dc.identifier.issue4en_HK
dc.identifier.spage405en_HK
dc.identifier.epage416en_HK
dc.identifier.isiWOS:000297244400008-
dc.publisher.placeUnited Kingdomen_HK
dc.identifier.scopusauthoridAu, AH=54387984500en_HK
dc.identifier.scopusauthoridLam, WW=7203022022en_HK
dc.identifier.scopusauthoridChan, MC=7402597760en_HK
dc.identifier.scopusauthoridOr, AY=8562756500en_HK
dc.identifier.scopusauthoridKwong, A=8913654300en_HK
dc.identifier.scopusauthoridSuen, D=8876971300en_HK
dc.identifier.scopusauthoridWong, AL=54416641900en_HK
dc.identifier.scopusauthoridJuraskova, I=16304242100en_HK
dc.identifier.scopusauthoridWong, TWT=7403531305en_HK
dc.identifier.scopusauthoridFielding, R=7102200484en_HK

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