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Conference Paper: With Others and for Others: Accounting for Decisions about Genetic Testing in the Clinic

TitleWith Others and for Others: Accounting for Decisions about Genetic Testing in the Clinic
Authors
Issue Date2014
PublisherMedcom Limited. The Journal's web site is located at http://www.hkjpaed.org/index.asp
Citation
The 2014 Joint Annual Scientific Meeting of the Hong Kong Paediatric Society and Hong Kong Paediatric Nurses Association, Hong Kong, China, 15 June 2014. In the Hong Kong Journal of Paediatrics (New series), 2014, v. 19 n. 3, p. 197-198 How to Cite?
AbstractWhile there are various factors influencing clients' decisions about genetic testing; testing for the sake of others is not uncommon. This paper focuses on decisions about testing (DOT) when a genetic mutation is identified in a Sudden Arrhythmia Death Syndromes (SADS) patient and it is unclear whether the mutation is the cause of the disease. Family members are then asked to consider genetic testing to ascertain the client’s genetic status and future risk. The paper examines, at the interactional level, how genetic counselors, clients and family members negotiate decisionmaking involving others. The data consists of 23 video-recorded consultations obtained from a Hong Kong hospital. Episodes of decisionmaking about testing are identified and extracted from the transcribed data. By using theme-oriented discourse analysis, the analysis focuses on the discourse strategies that participants employ to foreground the possible benefits when other family members undergo the genetic test. Preliminary findings show a disjuncture of perspectives between genetic counselors and family members in terms of the benefits of testing. While genetic counselors see testing as a means of confirming the diagnosis and managing risk, family members voice concerns about the usefulness of the test for a client's treatment. To mitigate these different perspectives on DOT, participants use a range of discourse strategies, such as contrast, foregrounding, self-and-other construction as a way of emphasizing future scenarios. This study, in sum, elucidates how other-oriented decisions are made in the clinical setting.
DescriptionPoster Presentation
Persistent Identifierhttp://hdl.handle.net/10722/199811
ISSN
2015 Impact Factor: 0.194
2015 SCImago Journal Rankings: 0.123

 

DC FieldValueLanguage
dc.contributor.authorAu Yeung, KYGen_US
dc.contributor.authorZayts, OAen_US
dc.contributor.authorSarangi, Sen_US
dc.contributor.authorChung, BHYen_US
dc.date.accessioned2014-07-22T01:39:22Z-
dc.date.available2014-07-22T01:39:22Z-
dc.date.issued2014en_US
dc.identifier.citationThe 2014 Joint Annual Scientific Meeting of the Hong Kong Paediatric Society and Hong Kong Paediatric Nurses Association, Hong Kong, China, 15 June 2014. In the Hong Kong Journal of Paediatrics (New series), 2014, v. 19 n. 3, p. 197-198en_US
dc.identifier.issn1013-9923-
dc.identifier.urihttp://hdl.handle.net/10722/199811-
dc.descriptionPoster Presentation-
dc.description.abstractWhile there are various factors influencing clients' decisions about genetic testing; testing for the sake of others is not uncommon. This paper focuses on decisions about testing (DOT) when a genetic mutation is identified in a Sudden Arrhythmia Death Syndromes (SADS) patient and it is unclear whether the mutation is the cause of the disease. Family members are then asked to consider genetic testing to ascertain the client’s genetic status and future risk. The paper examines, at the interactional level, how genetic counselors, clients and family members negotiate decisionmaking involving others. The data consists of 23 video-recorded consultations obtained from a Hong Kong hospital. Episodes of decisionmaking about testing are identified and extracted from the transcribed data. By using theme-oriented discourse analysis, the analysis focuses on the discourse strategies that participants employ to foreground the possible benefits when other family members undergo the genetic test. Preliminary findings show a disjuncture of perspectives between genetic counselors and family members in terms of the benefits of testing. While genetic counselors see testing as a means of confirming the diagnosis and managing risk, family members voice concerns about the usefulness of the test for a client's treatment. To mitigate these different perspectives on DOT, participants use a range of discourse strategies, such as contrast, foregrounding, self-and-other construction as a way of emphasizing future scenarios. This study, in sum, elucidates how other-oriented decisions are made in the clinical setting.-
dc.languageengen_US
dc.publisherMedcom Limited. The Journal's web site is located at http://www.hkjpaed.org/index.asp-
dc.relation.ispartofHong Kong Journal of Paediatrics (New series)en_US
dc.rightsCreative Commons: Attribution 3.0 Hong Kong License-
dc.titleWith Others and for Others: Accounting for Decisions about Genetic Testing in the Clinicen_US
dc.typeConference_Paperen_US
dc.identifier.emailZayts, OA: zayts@hkucc.hku.hken_US
dc.identifier.emailChung, BHY: bhychung@hku.hken_US
dc.identifier.authorityZayts, OA=rp01211en_US
dc.identifier.authorityChung, BHY=rp00473en_US
dc.description.naturepublished_or_final_version-
dc.identifier.hkuros230882en_US
dc.identifier.hkuros232893-
dc.identifier.volume19en_US
dc.identifier.issue3-
dc.identifier.spage197-
dc.identifier.epage198-
dc.publisher.placeHong Kong-

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