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Article: Maximising engagement, motivation and long term change in a structured intensive education programme in diabetes for children, young people and their families: Child and Adolescent Structured Competencies Approach to Diabetes Education (CASCADE)

TitleMaximising engagement, motivation and long term change in a structured intensive education programme in diabetes for children, young people and their families: Child and Adolescent Structured Competencies Approach to Diabetes Education (CASCADE)
Authors
Issue Date2009
PublisherBioMed Central Ltd. The Journal's web site is located at http://www.biomedcentral.com/bmcpediatr/
Citation
Bmc Pediatrics, 2009, v. 9, p. 57 How to Cite?
AbstractBackground: This trial aims to evaluate effective delivery and cost effectiveness of an innovative structured psycho-educational programme (CASCADE) for young people and their families living with diabetes. The increase in numbers of people being diagnosed with diabetes is posing a challenge for both the UK and the rest of the world. The peak age for diagnosis is between 10 and 14 years of age. There is clear evidence that improved diabetes control from diagnosis in childhood can reduce the incidence and progression of long-term complications. However, despite the development of improved insulin regimens and delivery methods, the overall metabolic control in children and adolescents has improved little in the UK in the past decade. Therefore there is a need for novel interventions and health delivery mechanisms aimed at young people and their families to help improve control and reduce complications, illness burden and costs to the NHS. Methods/Design: The CASCADE trial is a multi-centre randomised control trial with 26 clinics randomised to control or intervention groups, with 572 children and young people involved in the study. The intervention will be delivered in 4 group sessions, over a 4 month period. A developmentally appropriate curriculum will be delivered to groups of 3 - 4 families, focusing on achievement of increasing competency in self-management of diabetes. The control group will receive standard care from their clinical team, usually consisting of regular 3-monthly clinic visits and telephone contact as required with the clinical nurse specialist and consultant. The primary outcomes of the trial will be change in HbA1c between baseline and 12 months and 24 months post recruitment. Secondary outcomes will include measures related to the economic evaluation, psychosocial outcomes, outcomes related to management of diabetes outcomes, and adherence to the intervention. Discussion: The trial will be run by independent research and service delivery teams and supervised by a trial steering committee. A data monitoring and ethics committee has been put in place to monitor the trial and recommend stopping/continuation according to a Peto-Haybittle rule. The trial will be conducted according to the principles of MRC Good Clinical Practice (GCP) Guidelines and CTRU Phase III Trial Standard Operating procedures. © 2009 Christie et al; licensee BioMed Central Ltd.
Persistent Identifierhttp://hdl.handle.net/10722/171388
ISSN
2015 Impact Factor: 1.813
2015 SCImago Journal Rankings: 1.097
ISI Accession Number ID
References

 

DC FieldValueLanguage
dc.contributor.authorChristie, Den_US
dc.contributor.authorStrange, Ven_US
dc.contributor.authorAllen, Een_US
dc.contributor.authorOliver, Sen_US
dc.contributor.authorWong, ICKen_US
dc.contributor.authorSmith, Fen_US
dc.contributor.authorCairns, Jen_US
dc.contributor.authorThompson, Ren_US
dc.contributor.authorHindmarsh, Pen_US
dc.contributor.authorO'neill, Sen_US
dc.contributor.authorBull, Cen_US
dc.contributor.authorViner, Ren_US
dc.contributor.authorElbourne, Den_US
dc.date.accessioned2012-10-30T06:13:48Z-
dc.date.available2012-10-30T06:13:48Z-
dc.date.issued2009en_US
dc.identifier.citationBmc Pediatrics, 2009, v. 9, p. 57en_US
dc.identifier.issn1471-2431en_US
dc.identifier.urihttp://hdl.handle.net/10722/171388-
dc.description.abstractBackground: This trial aims to evaluate effective delivery and cost effectiveness of an innovative structured psycho-educational programme (CASCADE) for young people and their families living with diabetes. The increase in numbers of people being diagnosed with diabetes is posing a challenge for both the UK and the rest of the world. The peak age for diagnosis is between 10 and 14 years of age. There is clear evidence that improved diabetes control from diagnosis in childhood can reduce the incidence and progression of long-term complications. However, despite the development of improved insulin regimens and delivery methods, the overall metabolic control in children and adolescents has improved little in the UK in the past decade. Therefore there is a need for novel interventions and health delivery mechanisms aimed at young people and their families to help improve control and reduce complications, illness burden and costs to the NHS. Methods/Design: The CASCADE trial is a multi-centre randomised control trial with 26 clinics randomised to control or intervention groups, with 572 children and young people involved in the study. The intervention will be delivered in 4 group sessions, over a 4 month period. A developmentally appropriate curriculum will be delivered to groups of 3 - 4 families, focusing on achievement of increasing competency in self-management of diabetes. The control group will receive standard care from their clinical team, usually consisting of regular 3-monthly clinic visits and telephone contact as required with the clinical nurse specialist and consultant. The primary outcomes of the trial will be change in HbA1c between baseline and 12 months and 24 months post recruitment. Secondary outcomes will include measures related to the economic evaluation, psychosocial outcomes, outcomes related to management of diabetes outcomes, and adherence to the intervention. Discussion: The trial will be run by independent research and service delivery teams and supervised by a trial steering committee. A data monitoring and ethics committee has been put in place to monitor the trial and recommend stopping/continuation according to a Peto-Haybittle rule. The trial will be conducted according to the principles of MRC Good Clinical Practice (GCP) Guidelines and CTRU Phase III Trial Standard Operating procedures. © 2009 Christie et al; licensee BioMed Central Ltd.en_US
dc.languageengen_US
dc.publisherBioMed Central Ltd. The Journal's web site is located at http://www.biomedcentral.com/bmcpediatr/en_US
dc.relation.ispartofBMC Pediatricsen_US
dc.subject.meshAdolescenten_US
dc.subject.meshChilden_US
dc.subject.meshCurriculumen_US
dc.subject.meshDiabetes Complications - Epidemiology - Prevention & Controlen_US
dc.subject.meshDiabetes Mellitus - Blood - Epidemiology - Therapyen_US
dc.subject.meshDisease Progressionen_US
dc.subject.meshEngland - Epidemiologyen_US
dc.subject.meshFamilyen_US
dc.subject.meshFemaleen_US
dc.subject.meshFollow-Up Studiesen_US
dc.subject.meshHemoglobin A, Glycosylated - Metabolismen_US
dc.subject.meshHumansen_US
dc.subject.meshHypoglycemic Agents - Therapeutic Useen_US
dc.subject.meshIncidenceen_US
dc.subject.meshInsulin - Therapeutic Useen_US
dc.subject.meshMaleen_US
dc.subject.meshPatient Complianceen_US
dc.subject.meshPatient Education As Topic - Methodsen_US
dc.subject.meshPrognosisen_US
dc.subject.meshQuality Of Lifeen_US
dc.subject.meshQuestionnairesen_US
dc.subject.meshTime Factorsen_US
dc.titleMaximising engagement, motivation and long term change in a structured intensive education programme in diabetes for children, young people and their families: Child and Adolescent Structured Competencies Approach to Diabetes Education (CASCADE)en_US
dc.typeArticleen_US
dc.identifier.emailWong, ICK:wongick@hku.hken_US
dc.identifier.authorityWong, ICK=rp01480en_US
dc.description.naturelink_to_subscribed_fulltexten_US
dc.identifier.doi10.1186/1471-2431-9-57en_US
dc.identifier.pmid19754965-
dc.identifier.scopuseid_2-s2.0-70449382834en_US
dc.relation.referenceshttp://www.scopus.com/mlt/select.url?eid=2-s2.0-70449382834&selection=ref&src=s&origin=recordpageen_US
dc.identifier.volume9en_US
dc.identifier.spage57en_US
dc.identifier.isiWOS:000270712500001-
dc.publisher.placeUnited Kingdomen_US
dc.identifier.scopusauthoridChristie, D=7102638286en_US
dc.identifier.scopusauthoridStrange, V=6602595162en_US
dc.identifier.scopusauthoridAllen, E=35202921100en_US
dc.identifier.scopusauthoridOliver, S=7202288559en_US
dc.identifier.scopusauthoridWong, ICK=7102513915en_US
dc.identifier.scopusauthoridSmith, F=7402856186en_US
dc.identifier.scopusauthoridCairns, J=24354796200en_US
dc.identifier.scopusauthoridThompson, R=22942100400en_US
dc.identifier.scopusauthoridHindmarsh, P=7102095952en_US
dc.identifier.scopusauthoridO'Neill, S=21636702500en_US
dc.identifier.scopusauthoridBull, C=35145457100en_US
dc.identifier.scopusauthoridViner, R=7005899067en_US
dc.identifier.scopusauthoridElbourne, D=7006150542en_US
dc.identifier.citeulike5789565-

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