Framework and Components for Advance Care Planning Intervention for Dementia (ACP-D): A Delphi study
Dr Leung, Yee Man Angela (Principal investigator)
Advance care planning, mild dementia, Chinese, Delphi study
Block Grant Earmarked for Research (104)
HKU Project Code
Seed Funding Programme for Basic Research
Objectives: This study aims to (1) solicit caregivers’ views about ACP and incorporate their views in the intervention, and refine the intervention, if necessary; (2) validate and attest the applicability and practicability of the ACP-D intervention in day care centres in Hong Kong. Method: This study consists of three components: (1) conduct individual interviews with 30 caregivers who provide direct support or care to patients with mild dementia; (2) conduct focus group interviews with 24 health practitioners who provide direct service to patients with mild dementia in Hong Kong; (3) consult a renowned researcher in John Hopkins University or Duke University who works in dementia caregiving or dementia-related intervention. Interviews with caregivers: Each interview will last for at least one hour so as to solicit their concerns about ACP in dementia, their existing resources, the resources needed and perceived capacity to involve in ACP. All interviews with caregivers will be recorded and key themes will be identified by thematic analysis. Focus group interviews with health practitioners: Each focus group interview will invite 6-8 health practitioners. Delphi method will be used to solicit consensus among these practitioners on the feasibility and practicability of the ACP-D intervention in the clinical settings. The ACP-D intervention is guided by 20 questions. Each question will be rated independently based on three aspects including clarity, validity and applicability on a 5-point Likert-scale. Questions with 75% or above of participants scoring 4-5 on all three aspects would be included in the ACP-D intervention. For those questions not reaching 75% of consensus in any one of the aspect, it will be revised or discarded following the group discussion, and be re-rated in another round. Consultation with renowned researcher: Consultation with the invited renowned professor in dementia caregiving research will be made through skype meetings and email communication. Advices and inputs will be solicited to refine the ACP-D intervention. Significance of the study: This study will contribute to the development of an interactive advance care planning intervention that meets the need of Chinese patients with mild dementia and addresses the concerns and issues of caregivers. Its applicability and practicability will be tested and this testing will give confidence to the next step of research – testing of efficacy of the ACP-D intervention in a randomized controlled trial (GRF re-submission in 2016/17).